Résumé
"We have to fight for Down's syndrome. People see people with Down's syndrome as abnormal. Those who make fun of me, I ignore. Period. That's how I feel as a Down's sufferer. You have to say to yourself: 'I've got more chromosomes than them.'" When Éléonore was born, the doctors considered her a "chromosomal aberration" and urged her parents not to get attached to her. With Down's syndrome and a heart defect, they gave her little chance of survival. Twenty-eight years later, Éléonore is more alive than ever. Now an independent adult, she recounts her years of struggle with her parents to remain in a mainstream environment, and her refusal to be reduced to her illness. With humor, she shares her daily life, between her two-room apartment, her "job," her tumultuous love affairs and her passion for pop rock. Éléonore is determined to change people's perception of Down's Syndrome.
Auteur
-
Éléonore Laloux works at a private hospital in Arras. She is the spokesperson for the Amis d’Éléonore collective, which fights against the stigmatization of Down’s Syndrome.Yann Barte is a journalist. A former reporter and political editor, he has been working on disability issues for several years.
Auteur(s) : Éléonore Laloux
Caractéristiques
Editeur : Max Milo Editions
Auteur(s) : Éléonore Laloux
Publication : 11 juillet 2024
Support(s) : Livre audio [MP3]
Protection(s) : Aucune (MP3)
EAN13 Livre audio [MP3] : 9782315019359
EAN13 (papier) : 9782315012282